Tuesday, December 30, 2008
Thursday, December 25, 2008
Tuesday, December 23, 2008
Wednesday, December 17, 2008
Friday, December 12, 2008
Thursday, December 11, 2008
I made a slideshow to wish everyone a Merry Christmas from the COLE Foundation. There are a select few children (19 to be exact, and it was very hard to chose from the 500+ children we have) who are featured in the video. However, I chose your child to be in the slideshow. Please go take a look at it.
Saturday, December 6, 2008
Wednesday, December 3, 2008
Monday, December 1, 2008
Saturday, November 29, 2008
Thursday, November 20, 2008
Thursday, November 13, 2008
Wednesday, November 12, 2008
Tuesday, November 11, 2008
Sorry for the late update. Ty had a pretty good day today. He went down for an ultrasound of his pancreas pretty early this morning. We haven't heard any results yet but I'm assuming things are okay. When we got back, he was sleepy and climbed up on my pillow and laid down. I decided that was too good an opportunity to pass up so we napped until noon! He is such a snuggle bunny.
The afternoon was fairly calm. Dr. Asselin came in and said that things still look good for going home tomorrow. Ty's blood cultures are still negative for bacteria. The new antibiotic seems to be working fine with no reactions. I learned how to use the pump for his feeding tube today and that is pretty simple.
So, we're crossing our fingers and toes in hopes of going home tomorrow. I'll keep you posted!!
Monday, November 10, 2008
They weighed Ty this morning and he has gained a little more than a pound since he was admitted. That is very encouraging. He is looking a little puffy and such in his face so they took him off his fluids for awhile to see if that helps.
Saturday, November 8, 2008
Friday, November 7, 2008
It has been a long week! I came home tonight to stay for the weekend and Brent is staying at the hospital with Tyler. The past 24 hours have been pretty busy.
After Ty got the fever yesterday, they started him on some antibiotics. He never did throw up again, thank goodness. The blood cultures came back and he does test positive for some bacteria, meaning he does have an infection. They're still trying to narrow down exactly what it is but they switched to a different antibiotic in addition to one that he was already on. About 11:00 last night he got really shaky, irritable and pale. His heart rate was very high and he spiked a fever again. He was shivering so hard. His nurse came in and then quickly went out to call the doctor who called another doctor. Soon we had the docs in checking him out. They thought he may have had a reaction to the new antibiotic. They pumped him full of fluids really quickly and gave him some Tylenol. He seemed to settle down and then he was exhausted. Poor little man. I was so worried about him that I couldn't sleep. I finally fell asleep only to hear his heart monitor going off again around 7:00 this morning. He had the same reaction again and his nurse called in the doctor again. They pumped him full of fluids again and that plus the Tylenol helped.
Today during the day they went ahead and gave him a blood transfusion. His counts were a little low and they were hoping that would help.
This evening right around 7:00 Ty had another shivering, fever, heart rate episode. It happened after they did the antibiotic again. We're not sure if they are going to eliminate this antibiotic but that seems to make the most sense to me. We'll see what they decide. Brent said it didn't last long but I think we knew the warning signs and caught it early and gave him the Tylenol right away. Poor little guy!
They said that he will probably be there several more days until they can figure out exactly what type of infection he has. Plus he has to be infection free in his blood cultures for 48 hours before they will release him. He will have to come home on IV antibiotics but that's nothing new.
They also decided that he was not getting enough nutrition and finally started him on G-tube feeds tonight. Brent and I have been asking about this for the past few weeks so we were really glad they finally made a plan and got those started. Of course, he has had such horrible diarrhea that they were trying to give his tummy a break too.
So, that's where we are tonight. I hope he and Daddy can get some rest. I will update again tomorrow.
Thank you all for your love and prayers. If you haven't signed Tyler's guest book in awhile, please do. We love hearing from you!!
Thursday, November 6, 2008
Wednesday, November 5, 2008
Tuesday, November 4, 2008
Sunday, November 2, 2008
Saturday, November 1, 2008
It is with great sadness and a heavy heart that I let you all know that our sweet little friend Brandon Polito passed on today and returned to live with his Father in Heaven. He was surrounded by his family and friends. Please continue to pray for his family. If you had planned to join us in fasting tomorrow, please do. We will fast for Brandon's family. Please visit his Caring Bridge site and leave a message.
Monday, October 27, 2008
My friend Teri sent me this picture last night. I almost cried! This was taken three days after we became Emmalee's parents. She was eighteen days old. Tyler was almost eleven months! Can you believe how tiny Emma was? She looks like a doll in her car seat. Time sure flies!
Sunday, October 26, 2008
Monday, October 20, 2008
Sunday, September 14, 2008
Sunday, August 24, 2008
Alright, thanks for letting me vent. Actually, I really do have much to be thankful for. Brent is home. Although he is still not up to par, he is home and recovering. I am so happy about that!
Brent's Mom is here visiting and helping. To be honest, I don't know how we would make it without her. She is incredible and I am so thankful to have her here. The kids have all bonded with her but especially Nate. He gets super excited when she comes near him and I think that he is going to be really sad when she goes home. That goes for all of us, though.
Tyler is in the midst of "roid rage" and it is the worst we've seen. He is miserable. Poor little guy didn't sleep at all last night which meant Brent was also awake since I am of little use. Luckily he went to sleep pretty early tonight and we're hoping he gets some good rest. He is still doing his IV antibiotics and we pray that the infection gets better.
Emmalee has really enjoyed having her Grama Gardner here. They have been playing outside and reading lots of stories. Emma has also shown a real love for laundry! She was quite disappointed today when Grama told her they weren't doing laundry since it was Sunday.
Nathaniel is doing great. That boy just stays calm even during the craziest circumstances. He is such a love! He is truly a calming influence in our home. He has changed so much, even in just the past couple of weeks. He is very vocal now and loves to chatter, scream, squeal, etc. I think he likes hearing his own voice. Speaking of hearing...it is becoming more and more obvious that he does hear. He is very responsive now, turns when we call his name, looks when he hears a noise, etc. He is also beginning to imitate sounds. I think that perhaps he just needed time to catch up and for everything to start working together. We will still take him to the neurologist at the end of October but I am getting less and less concerned. I honestly believe that he will be just fine. I think it will just take him longer to develop than other kids. Considering he was nearly four months early, that is totally understandable. Either way, Nate is one amazing, adorable, sweet little boy!
As for me...I go to the doctor on Thursday and I hope and pray she takes this cast off and fits me with something more manageable. The cast I am in now is really starting to bug me. It is a temp cast anyway but I am hoping the next step isn't something even more confining. Most people don't know this about me but I have very claustrophobic feet. I know that sounds odd but these past two weeks of having to have them bound up has really started to get on my nerves. Sleeping is almost unbearable. (I don't even like to sleep with socks on!) Luckily I can take the boot off my left foot and give it a breather once in awhile. It is going to be a long twelve weeks....only ten to go!
All in all, things are getting better. Maybe the voodoo dolls have been put away for awhile. Thank you all for your continued love, support and prayers. We truly appreciate each of you!
Sunday, August 17, 2008
Wednesday, August 13, 2008
Sunday, August 10, 2008
Tuesday, August 5, 2008
Tuesday, July 29, 2008
Thanks to everyone for your continued love and support!
Monday, July 28, 2008
Saturday, July 26, 2008
Friday, July 25, 2008
Still aren't sure what the infection is. We won't be able to go home until Monday, at the earliest. So, we'll just hang out here this weekend and hope for Monday! Thanks to everyone for checking in and leaving comments. Keep the prayers coming!!