Best Christmas Gift, EVER!!

Moms of typical children may wait 18 months or so. Moms of children with special needs may wait a lifetime. With Nathaniel, I waited just over four years but it was so worth it! When I opened his bedroom door this morning to get him ready for school he said the one word I've longed to hear, "MOMMY!" Best Christmas present ever! And now I can't stop crying. :)

Don't get me wrong. He has said the word before, when prompted. But he has never looked at me and said my name. He has said Daddy to Brent and Ty and Em's names. But not Mommy. I was so surprised when he said it that I just stood there for a second. Sure love that little boy!!

Brent & Fundraisers

Many of you follow Brent's caringbridge website and know that his health is very poor at this time. For those of you who don't know how things are going, here's the site information.

http://www.caringbridge.org/visit/brentgardner/

In an effort to help our family, several of our amazing friends have begun fundraisers on behalf of our family. Our friend Sue has put together a blog to keep everyone updated on the fundraisers.

http://help4thegardners.blogspot.com/

Bag, Anyone?

Tyler is starting to realize that not everyone has a colostomy bag. Recently he lifted my shirt up and said, "momma, where's your bag?" Brent, Em and I all had to pull our shirts up and show him our bellies so he could see that we don't have bags. I think that confused him more since Nate does have a bag.

Ty is somewhat obsessed with his bag. It is a constant battle with him -- pulling the bag off, hitting the bag, lifting his shirt to get to the bag, going down his shirt to get to the bag, etc. We are constantly telling him, "Ty, don't touch your bag....don't take your bag off!"

Apparently he didn't realize that our dog, Max, doesn't have a bag. This morning things were a little bit crazy in our house. Em was sick which threw off my whole groove. I was running around trying to get everyone ready, out the door and on their buses on time. Poor Max was crying and needed to go potty. I was changing Tyler's diaper and I was ignoring Max and hoping he would be able to hold it for just a couple more minutes. He couldn't. He gave me a sheepish look and started to poop on the floor. I immediately yelled at him, "MAX, DON'T POOP!" Tyler, seeing the poop, yelled, "MAX! Don't take your bag off!"

So glad he understands the rules. Now if we could just get him to follow them.....

Metal Head

Nate likes to head butt. Hard. And it hurts. I try especially hard to not be on the receiving end. We all avoid it, if possible.

Poor Em got it good the other day. I heard it hit and it hit hard. Poor little bunny. When the crying had finally ceased she said to me, "Mom, why is Nate's head made of metal?" It was all I could do to not laugh, out loud, really loudly. I failed. She was not appreciative. So I did my best to explain that his skull is made of bone, just like the rest of ours. I'm not so sure she was convinced.

Fast forward to tonight. Em had me laying on her floor and she was giving me a back massage, aka hitting me really hard karate-chop style. **Funny side note....as she was beating me up -- I mean, massaging my back -- she says, in all seriousness, "isn't this just like being at a salon?" Of course it was. Only, not really.**

So, during the midst of my "salon massage" we could hear Natey jumping on his bed, yelling and just generally being wild. And I say to Em, "where does that kid get his energy?" And she replies, "who knows. What I wonder is where he gets his metal head from." This got me giggling for sure but her next comment had me laughing so hard I couldn't talk. She says, "you know mom, maybe black people's heads are just stronger."

Oh Em, where do you come up with this stuff?

Happy Fourth Birthday, Nate!

Four years ago today our sweet little Nate came into this world. He came much too soon. He was born 15 weeks early and weighed a whopping 17 ounces. His prognosis was poor. He faced an incredibly difficult uphill battle. The doctors weren't certain he would survive. All of the odds were stacked against him.

And yet, his birth mom, with the greatest love and courage, made an adoption plan for him. She knew that if he did make it through, he would need a family. She contacted Adoption STAR and put the fate of her too small baby boy in their hands. Her love and sacrifice amaze me to this day.

Four years ago Brent and I were considering adopting again. It is something we had talked about quite a bit. But, though our hearts were ready, our finances weren't. We had decided that we would wait until 2008, until the money was there, until we were a bit more ready.

Of course, as we have learned time and time and time again, these things aren't exactly up to us. When we got the call about Nathaniel, just as with Tyler and Emmalee, I knew. I knew this sweet baby boy was meant to be in our family. I wasn't sure how we would make it happen but I had faith that if this was the plan for our family, it would work out.

Brent and I worried so much about Nathaniel's prognosis. At times the doctors were hopeful and encouraging. At times they were convinced he wouldn't survive. We were unable to go and visit him because our paperwork wasn't quite done and we were waiting on things like background checks and fingerprint clearances; things that were beyond our control.

Through it all Nate fought. He beat the odds, amazed the doctors and came through. He had setbacks and created fear and then beat the odds again. No doubt about it, that little boy is a fighter!! After all, he is a Gardner!

Through it all we fought. We had yard sales and online fundraisers. We had raffles and, I'll admit, we outright asked for money. We had faith that it would work out. We KNEW this child was meant to be ours and we put our faith in Heavenly Father, knowing that He would help us get things in order.

And He did. Looking back I am still overwhelmed by the love and generosity of our family, friends and even strangers. It still brings tears to my eyes.

Many people ask why Nathaniel's middle name is Roger. He is named after a very special man who helped to make sure that Nate made it home to our family. His financial contribution, along with a matching contribution from his company, was the final $1000 we needed to get Nate home. It was literally an answer to prayers. We decided to name our baby Nathaniel Roger so that we would always be reminded of his love and generosity. It is also a reminder that prayers are heard and that things do work out the way they are meant to.

Today our too small, very ill baby boy is four years old. As I write this I am overwhelmed with emotion. The past four years have been a roller coaster ride for our family. We have faced challenges we never could have predicted. And yet, just as Nate has always done, we have fought. We are strong and determined and faithful. After all, we are Gardner's!

Nathaniel amazes me every single day. His name means "Gift from God" and he certainly is!

Happy Birthday, Natey. We love you!!!

Seven Years

Seven years ago today I became a Momma. I held my sweet baby boy for the very first time and marveled that God had seen fit to allow me to parent this perfect angel.

As we were preparing to come to NY to adopt Tyler I remember practicing over and over the first words I would say to him when I held him. "Hi, I'm your Momma." And I can clearly remember holding him close and whispering those words to him. It was something that I had longed to say to my child for many, many years. It was something I wasn't sure I would ever get to say.

I'm not sure I felt like a mom right away. I think when you adopt, the feelings come in waves. For the first couple of weeks I remember feeling like at any moment someone would come and take him back and say okay, your time is up.

I clearly remember one particular day when I realized that this was my child, forever, and no one was coming to take him. I was rocking him and it was quiet in the house and I just had this overwhelming wave of emotion. I clearly heard the spirit tell me, "this is your child. This is the child that God intended for you to have." I sat and held my baby and cried for a long time that day. I cried tears of joy, tears of humility and tears that helped me let go of the emotion of waiting for that day to come.

Tyler has changed our lives in ways I could never have predicted. I am in constant awe of his strength, his spirit, his love for others. He amazes me every single day.

Many, many people are part of Tyler's story including his incredible birth family and his self-less first adoptive parents and many others. I think of them every day and say a prayer of gratitude that because of them, I am Tyler's Momma.

Tyler, we love you so very much! I am so thankful that on that beautiful day, seven years ago, I was able to whisper to you, "Hi, I'm your Momma."

It's A Hard Job!

Dear Emmalee,

It is not my job to be your best friend. It is my job to be the mom. I know that doesn't always make you happy. Just remember that I do it because I love you! Hopefully one day when you are the mom, you will appreciate it.

Love,

Mom

Nathaniel

Nathaniel had colostomy surgery done on Monday, June 13. Feel free to follow along with his recovery by going to his Caringbridge site,

http://www.caringbridge.org/visit/nathanielgardner

You can eat off my floor......

......there are crumbs everywhere!

This is, perhaps, the perfect title for my blog. Or maybe it should be something like, "Send in the Clowns," complete with circus music playing when people log in. Most days this is how I feel.

I had to take a bloggy break. I haven't really posted lately and I really haven't kept up on reading any of my favorite blogs. It wasn't necessarily a conscious decision but I have to say, it has been a much needed break.

It's funny....the "famous" blogs that I frequent are written by amazing women whose goal and desire is to help their readers feel good about themselves. For me, however, the opposite has happened. Instead of feeling better about myself as a mom/wife/friend/person, I began looking at myself and only seeing all the things I am not doing. I began comparing myself to these incredible women and feeling completely inadequate. After all, I don't sew, craft, sing, create fantastic art work, keep my house spotless or cook gourmet meals. I am not always patient. Sometimes I yell. Sometimes I want to lock myself in the bathroom and cry. (Okay, who am I kidding? Sometimes I DO lock myself in the bathroom.) I'm not a perfect mother or wife. I have low self esteem. I don't always shower. Sometimes I don't comb my hair. I don't quilt. I won't buy my kids Play-Doh because I hate the mess it makes. I'm not particularly good at anything specific. In other words, I'm nowhere near as amazing as these other moms. They do awesome things with and for their families. They bake, they sew, they grow their own food, they leap tall buildings in a single bound. They cook full course meals. They host fantastic parties. They go on fun family outings. They take hundreds of pictures so that they don't lose any memories. They enjoy every single second of parenthood. How do I know? Because despite how incredibly busy they must be, they are kind enough to blog about all of these things.

Don't get me wrong.....I'm not criticizing these amazing women. I love them. I have spent days/weeks/months/years attempting to be more like them. Wishing my life was more like theirs. And instead of realizing how amazing my own life is in its unique way, I eventually began comparing myself to them and only seeing my shortcomings. This led to my unplanned but very much needed bloggy break.

And then it hit me. DUH! I am not these women! My family life is nothing like theirs. My children are not like their children. I am me! My world is not their world and that's okay. Not only is it okay, it is amazing! I reminded myself that this is the life we chose. We chose to parent kids with special needs. We chose to take on these extra challenges, believing we were capable of doing it. And I have to say, for the most part I feel like we do a pretty good job.

So..........

Did I bake bread today? Nope. Instead I changed a colostomy bag. I cheered because even though he is almost four years old, Nate said "momma" more clearly than he ever has. I got a bit frustrated that even though he's nearly seven, Tyler still likes to throw his food on the floor when he's finished instead of just pushing his plate aside. I laughed so hard that I cried when Tyler tried to wink at me.

Did I sew a quilt today? Nope. Instead I watched a home video of Tyler as he was going through chemo and said a silent prayer of thanks that that chapter of our lives is over. I did some research on Autism and attempted to learn how to better help Nathaniel. I listened to Emmalee read a story to her brothers and marveled at how amazing she is with them. I sat through Nate's CPSE meeting and explained why he needs to be in a full day program next year so that he gets enough therapy in his day.

Did I host a fabulous party? Nope. Instead I prayed no one came over unannounced because my house was pretty messy and I hadn't taken a shower. I did some research on colostomy surgery since Nate is scheduled for that in June. I worried about how I am going to coordinate help and childcare for when that happens and we are faced with yet another hospital stay.

Did I cook a gourmet meal? Nope. Instead Brent and I researched Behcet's disease in an attempt to understand more about his illness and it's symptoms. I emailed a new mom whose son was unexpectedly born with Down syndrome. I took great pride in my sweet little Emmalee as she set the table for our very simple dinner.

Did we have a perfect family outing? I suppose. Perfect for us, anyway. Our perfect family outings generally consist of taking a drive in the van and going through an automatic car wash. The kids love it and Tyler is always sad when it's done. We don't do restaurants because the noise and stress are too much for the boys so we got take-out instead. And then we had to cut it short because Tyler pulled his colostomy bag off and Nate had a meltdown. That's pretty much par for the course on our family outings. (I can't even imagine trying to take a major trip somewhere. Maybe someday!)

Is our life perfect? Nope. But in a way I think it is perfectly un-perfect. Our life is unique. After all, our family is unique.

Am I a perfect mom/wife/friend? Not even close. But I am me. And I am slowly but surely beginning to realize that I don't have to be anyone else. I don't have to impress anyone. All I have to do is be the best me I can be.

So this is my life. Is it glamorous? Nope. Is it sometimes crazy? Absolutely! Would I change it? Not for anything in the world!!

Emma-Isms

Our sweet Emmalee turned six on April 6. I still can't believe she is six years old already. Where does the time go?

Em is very funny! She has been cracking us up lately. Here are a few of the latest.

Brent was putting her to bed a few nights ago and he told her he couldn't stand being in her room because it was so messy. She just looked at him and said, "Oh yea, well you're complicated!"

One morning she was complaining to Brent that her tooth hurt. I asked him what she said and he told me, "Em has a toothache." She said, "I don't have a toothache, my tooth just hurts!"

I told Em to get in the shower. I was in my room which is near her bathroom. She came into my room and said, "Mom, I'd be delighted if we could communicate while I'm in the shower."

We love you, sweet Emmalee!!

Pure Heaven

Best part of my day? Tyler said, "I want snuggle mom, pwease!" Complete with hugging himself when he said snuggle and signing please. There is no way to resist a request like that!! He pushed me down on the couch saying, "lay down," climbed up on me and fell asleep. Pure heaven, I tell you!

Potpourri

Wow, I can hardly believe that Christmas has come and gone and we are already two days into the new year. 2010 seems to have gone by really quickly. I'm glad. It wasn't the easiest year for our family. Not the most difficult either but none the less, I am glad to see it go.

We have enjoyed having the kids home for Christmas break. We are also looking forward to them heading back to school tomorrow. I think Ty is most excited. He has asked for his teacher and aide every single day since break started. He loves those ladies and everyone else in his class. What a blessing!

Emmalee has been cracking us up, as usual. Here are a few new Emma-Isms --

Em came home and told me that she told her teacher that our family speaks Spanish. I was surprised by this since we don't. At all. I told her that we don't in fact speak Spanish and she said, "of course we do. You know, uno, dos, tres....." Love it!

Em has been singing a lot lately. The funny part is that she doesn't really know the words. Some of our favorite renditions are "Fa-lees La De Dah, Fa-lees La De Dah, Fa-lees La De Dah oh blah, blah, blah." "You get your head up over...." (This is her version of the Hannah Montana theme song.) She's a hoot.

Natey is doing pretty well for the most part. I think Brent and I have resigned ourselves to the fact that he is going to have to have a colostomy. This was not an easy decision for us. But watching him struggle with the constant constipation is agonizing. We are going to make another appointment with the surgeon and see what our options are.

Brent is still struggling a great deal. He is trying a new medication given by IV infusion. We are praying it will help to relieve his symptoms. So far there has been no change but we've been told that it could take several doses.

Our Christmas was good. Very low key. It was a nice day and we sure enjoyed being together as a family.

We have a new family member. Max is a four month old yorkie poo who weighs in at a whopping five pounds. He is nothing but fluff and love. He is a super good puppy who LOVES the kids! It took us several months and lots of talking with doctors and such to find a dog that Emmalee wouldn't be allergic to. So far she has done great with Max and we are praying he will be a permanent member of our family. He is a love!!

The new year brings about thoughts of resolutions. I hate making them because I usually fail and I really don't like that. There is something I've wanted to do for a long time, though, and my brother in law Kyle and I sort of challenged each other to do it. I am keeping a photo a day blog for the year and hoping I can keep up on it. The new blog address is http://jodiedailyphoto.blogspot.com I think it will be a lot of fun!

Here's hoping the new year brings peace, joy and good health!