Well, I guess I should see this as good news but I am having a hard time saying that yet. Nate had his ABR test today. He is not deaf. Please don't misunderstand, I'm not sad about that, that is good news. However, he does not respond appropriately to sound which suggests something neurological is going on. That's where the bad news comes in. I'm not sure what to think at this point. He now needs to see a neurologist. The ABR showed 100% hearing in his left ear and 90 - 95% hearing in the right. In other words, the sound gets from his ears into his brain just fine. From there, who knows. Unfortunately the ABR can't tell us what happens to it after that. The doctor who performed the test did repeat some other tests as well and said that he can completely understand why we think he is deaf. He simply doesn't respond, even though he clearly hears. I am somewhat beside myself at this point. I am disappointed because we don't have a clear answer which is what I expected to get today. So, we'll move on from here and pray that the answers come quickly. Thanks to everyone for your thoughts and prayers.
5 comments:
We'll be praying for Nate and the doctors who see him that they can figure this out! Keep us posted!
Our continued prayers will be for Nate and his adoring family.
Hello and greetings from our home... I somehow stumbled upon your blog thru others...Our little guy reminded me of your Nathaniel in photos when he was little and now. Except our adopted guy is bi-racial and much lighter. Samuel is our son! He has developmental delays due to a possible "mosaic disorder" in which caused a malformation of his corpus collassom that allows the left and right side of the brains to communicate. He is missing a small lower portion and in our case this was visible thru an MRI and it is responsible for visual processing...Until April we thought he was to be blind.... Now he is able to see -track beads respond to my facial expressions and has even responded to visually seeing bubbles! He was the same way as that his eyes were completely healthy but the brain was not processing the image. I definitley reccomend first steps and any therapies if he has not already begun. I know that you guys have had your hands full with Tylers needs. However, Nate is lucky to have you and our family will continue to keep yours in our prayers.
I have a few suggestions maybe that can foster Nates hearing to help with processing Try music that allows him to feel the beat on the speakers ...Our little guy also has sensory issues with feeding as he is unaware that food is in his mouth unless drinking a bottle or leaving the spoon in his mouth to remove food. SO we are now using other things such as cold foods and also sour tastes so he can make his tongue aware of items.
Praying for u little sweet Nate!
Sorry you didn't quite get an answer. It is a blessing that you are in such a great place with great medical facilities around you. I hope your anwers will come quickly!
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